Rare Brain Disease
Sunday, March 6, 2016
Rare Brain Disease
When you have a rare
brain disease with no cure yet
So long ago as me being
inside my mother's
womb a very bad rare
brain disease was
passed on to me while
I was inside of my mother's
womb
Then from that time I
have found out that my
disease is called Arnold Chiari
Malformation Disease
and the bad pains of
everyday life upon your
body is completely hell no
way around it
And you may wish in
the back of your mind
silently that this
wasn't your real life
only a bad dream
but chiari is merely
killing me very slowly
©One_Pissed_Off_American_Ghost_Writer/Tina Glover all rights reserved Sunday March 6,2016 but posting here on 12/03/2017
http://unknownperson79.wordpress.com
https://www.writeoutloud.net/profiles/tinaglover
https://glover79.blogspot.com/?m=1
www.conquerchiari.org
Tina Glover
Mon 4th Dec 2017 06:11
Hi Martin,
Thank you for the kind words of support yes it's brave poem to share with everyone but we as chiarians we have to bring more awareness to this awful killer rare brain disease and yes about me writing in the first place well that is a good way to release anxiety and pressures of dealing with this disease daily but I'm hoping and praying later on that it does not affect my ability to write knowing the factors of this awful disease and what it can do and how it is killed within the past year 2017 it has killed at least six to seven Chiarians so far and one just passed away on December 1,2017 due to having surgery and not waking back up from anesthesia and it's simple I'm a warrior and conqueror each day
But thank you for the comment back on this piece I do appreciate it