It’s not just me
When my brain of mine started to malfunction
The doctors found a label for my chemical soup
Parkinson’s it read, which initially didn’t dawn
It’s not just me who has unjustly been afflicted
Sometimes when I am alone with my thoughts
They wander from the man I was to him I’m going to be
Waves of sadness envelope me, overcome senses
I sob uncontrollably into a dark place devoid of reason
The love of my life had married me for me myself
She hadn’t married this chemically modified future me
This was our voyage of discovery our all time love
I want her for my wife, my lover not as my carer
God blessed our love with two wonderful boys
They had every to expect an energetic dad
I was supposed to be a fun, dad a perfect role model
I was supposed to care for them, not them me
As a son of my parents love, I was the next generation
Don’t son’s grow up, leave home, testimony to their love
Shouldn’t they sit back with satisfaction as I achieved
They should’ve had their retirement, not worry over me
As my Parkinson’s creeps over me, overtaking systems
I worry what my friends see when face muscles stiffen
Do they think me boring person when my look so serious
Fatigue slows me down, I get tired, but I’m still me
I sometime panic wondering what strangers see
If I need a stick that immediately I am ten years older
As I walk; I shuffle, stagger along a sober drunk
I’ve seen those looks saying ‘look at that piss head’
I still weep in the dark, but sometimes I get stubborn
I get real angry thinking the degree I got was wasted
Then I say be dammed with all my Parkinsonism
I have a lot to offer and by God the world will get it
<Deleted User> (4281)
Mon 14th Apr 2008 07:41
Hello, Phil
Your poem has been written with all the deep feelings and the fear of who you will become when the illness progresses. There is good medicine out there to slow the process. You are doing great, Fight for the best in your life.
Be strong. Your family loves you. Your sons love you the way you are. Trust me on that!
I went trough very difficult time in my life with family health so I am speaking of my own experience. Just think of those who lived up to 80 plus and affected by this illness. I love your poem so much. You wrote this extremely well.
"""Then I say be dammed with all my Parkinsonism
I have a lot to offer and by God the world will get it"""
Do your best and God will do the rest!
The wrapping is self assuring and very powerful.
With my best wishes always;
Thank you,
Zuzanna