Dear Santa, 

I've been extra good this year

All I want is a cure for my

rare brain disease because

see Santa I was given this

disease before I left my

mothers womb so long

ago now

But life since that time has

been up and down daily like

a rocking roller coaster riding

throughout a non-stoppable

hurricane that is enough to

drive one ...

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{What I Need} 

What I need is to be 

the same person I was 

before chiari 

And what I need is

to be that person who

can be able to cope 

with life again

And I need to feel 

calm and not so 

panicky 

And I need to feel

good about myself

And not so bad 

about myself

And for the thing's in

my life that I am u...

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{Diary Of The Southern Queen Entry #11} {Noiseless Silence}

The sound's

of the noiseless

silence that

ringings out

in their head's

like the

amplifiers

sound's off

that she's

dead `n` she

lays there in

the echoes of

hysteria `n` 

the noiseless

noise covered

her lifeless

emotionless

body with the

darkness as

the amplifiers

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Overview

Chiari malformation

Chiari malformation (kee-AH-ree mal-for-MAY-shun) is a condition in which brain tissue extends into your spinal canal. It occurs when part of your skull is abnormally small or misshapen, pressing on your brain and forcing it downward.

Chiari malformation is uncommon, but increased use of imaging tests have led to more frequent diagnoses.

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{I'm About To Lose My Mind} 

I'm about ready

to lose my cotton

picken mind  

because the same

pain each day when

I open my eyes

is about ready to

drive this

woman totally insane 

because the throbbing,

aching, blurred 

vision, sensitivity

to light and 

​​​​​​sounds along with

the headache on top

of a bad migraine headach...

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Sunday, March 6, 2016

Rare Brain Disease

When you have a rare

brain disease with no cure yet

So long ago as me being

inside my mother's

womb a very bad rare

brain disease was

passed on to me while

I was inside of my mother's

womb

Then from that time I

have found out that my

disease is called Arnold Chiari 

Malformation Disease

a...

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{Diseased Brain}

Some day's I wish my brain worked like other's brain's did of being normal but since I was born this way I can't help it when my thinking or writing gets messed up with backwards word's or being out of place but I do fix them if I catch them 

But if I could help it I would but sometimes I have no control over that and it's like chiari takes over my train of th...

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{My Chiari Journey} 

 My Chiari journey hasn't been easy~peasy but it's a journey I have never had to walk alone but I have always been chiari strong as the day's are long and as my conquering journey continues on

 ©One_Pissed_Off_American_Ghost_Writer/Tina Glover 11/29/2017 all rights reserved

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